Friday, February 27, 2009
I talked to her today for just about 2 minutes and she was pretty tired and was struggling to find something that "TASTED" good. She says that everything tastes sour (and this too is a side effect of the chemo).
That's all for now - she's still glad to be home - it's just a little difficult trying to figure out how the chemo is going to effect her.
Wednesday, February 25, 2009
While everything is looking up - she still gets a little worn down from all the talking and pain medicine. Also, I think this is a side effect of the chemo, but her voice gets raspy.
Anyway, we just wanted to let you all know she's home and feeling good. She will go in for labs 10 days from yesterday (standard after the chemo). And then just before her next chemo she will go in for a CT Scan to make sure that the tumors are in fact shrinking. Aunt Kathy leaves early Friday morning and Aunt Molly will be here to tend to mom's needs. She's not ready for a bunch of visitors yet - and she has to be super careful to stay healthy. Thanks to everyone who's asked to be added to the list, Mom and Dad will probably be ready for some meals in the next week. As soon as mom is up for it...I'll have to show her how to POST to the BLOG so you can get updates from her.
Tuesday, February 24, 2009
Another funny thing - Mom accidentally called the Hospital a Hotel! Then she realized and said, "well I guess it is a hotel...a LUXURY HOTEL! I haven't had to make a bed in two weeks, haven't had to do any laundry, and I'll have a bill to boot."
She sounds good and is anxious to go home. CJ is even ready to go back to CA now that he knows Granny is going home.
Sunday, February 22, 2009
They removed her catheter today (that was put in on February 9th). She doesn't need the oxygen tubes in her nose anymore and she had a REAL SHOWER today!!! She is no longer on the IV Nutrition (they reduced that yesterday and eliminated it today) and she's looking forward to going home this week!!!
Saturday, February 21, 2009
As of today:
- They Reduced her Pain Medicine
- They Reduced her supplemental nutrients (since she is eating)
- SHE has been up walking around her floor several times
- SHE is getting more color
- SHE is able to talk more
- The nurses that were there when she was admitted are saying she is a WHOLE NEW PERSON!!!!
It sounds like she will get chemo on Tuesday (assuming she stays HEALTHY - no cold or other sickness AND if her blood work comes back with the right numbers). It also sounds like they MIGHT send her home next week!!!!
I'm not sure of the best way to organize this...BUT...I know that Karin Crawford at the church will be organizing meals. Karin will be in touch with mom and dad to find out what they need and then will work from the list of church members AND family/friends that also want to help. I need to provide Karin with that list of family/friends though.
Down the road, there may be other things that Mom & Dad may need help with (ie. transportation to appointments, house keeping, laundry, etc).
I know that many of you had said you want to help but I'm going to ask that IF you want to provide a meal or lend a helping hand in another way - please email me firstname.lastname@example.org your Name, Phone Number and Email. Please indicate the way in which you would like to help.
I will then compile the list of helpers and provide that to Karin so that she can be sure to include all you in the meal planning. I will also have a list of people and can contact you for other helping opportunities.
Thursday, February 19, 2009
Dr. Anderson (Oncologist), Dr. Field (OBGYN), and Dr. Johansen (Pain Specialist) were all in today and are pleased with her progress. They say she looks great. Mom said "I must look like a million bucks when I'm not in here if they think I look great!"
So far all of her blood counts are looking good, so we are looking forward to TUESDAY February 24, when they hope to administer her 2nd round of chemo.
UPDATES BASED OFF OF COMMENTS:
When mom had her surgery, they removed everything they thought was cancerous. Between the time of her surgery and the follow up CT Scans they think there was NEW GROWTH, so new tumors growing at a rapid rate.
As for visitors - IF you stop up to see her You should BE SURE that you don't have a Cold, Sore Throat, or any other sickness as the chemo weakens her immune system. In order for mom to stay strong, she needs to NOT be exposed to anything. ADDITIONALLY visits should be kept to a minimum (like 10 minute visits). I think that with the new news (from 2/21/2009) mom will be going home sooner that we anticipated, so you might just hold off until she goes home.
Tuesday, February 17, 2009
I saw mom one last time this morning and she seemed to be doing well.
Then Dad drove CJ and I to the airport in San Francisco. Our flight was delayed an hour but we made it home all safe and sound. CJ was so cute - on the descent into Kansas City he put his hands up to his ears because they were popping. I asked if he'd like a piece of gum to pop his ears and he said yes. I gave him the stick of gum and he stuck it in his ear!!! Made me laugh.
Anyway - I called mom tonight too to let her know we made it home and all. She said things are going well - but she still is only alert for little spurts of time. I talked to her for about 7 minutes and she was starting to doze on me.
There really isn't anything new to report other than that they moved the second bed out of the room and moved her over to the window side of the room. So now it's kind of a private room! They are taking good care of her.
That's all for tonight. Thanks for checking in - Be Well!
Monday, February 16, 2009
Her pain is pretty controlled now (YAY). Aunt Kathy says she only had to push her button a couple of times.
She is eating (WOO HOO). I hear she ate about 33% of her food (Pork chop, Green Beans, and Potato. She also liked the chocolate cake and milkshake they brought her).
Doc's been by to visit and he says - She'll probably be there another week at least but he agreed that she looks WAY Better now. He's keeping an eye on all her blood work because that will determine when he can administer her second chemo. HE is also considering a stronger dose of medicine (chemo) to be aggressive with the cancer.
She still is not up for visitors yet - but please know that she misses you all and is thinking about you...even while she's in the hospital!!!
Saturday, February 14, 2009
Three Docs came by to see her and it sounded like everything was looking good:
1) Dr Keiser (on call for Anderson her Oncologist) came in first - said he'd looked through her file and everything was looking good.
2) Dr Johansen was next - he's the pain specialist. He upped her pain medicine again so that she doesn't have to keep pressing the button to administer it herself. Last I heard, about 20 minutes ago from Marcus, her pain was down to a 3 on a 1-10 scale. That is FANTASTIC because she has consistently been anywhere from 5-22 over the last week.
3) Dr James was last and he's the urologist who is keeping an eye on her kidney functioning. He said her kidneys are near perfect but he's still keeping an eye on it (so this too is great news).
Then Father Lawrence, came today with a small crew (Nicholas, Genevieve, and Maggie) and gave mom Holy Unction.
Dad, CJ and I are making dinner quick and then we'll head back to the hospital to deliver a Valentine to her.
Friday, February 13, 2009
A urologist was sent in to monitor her kidney functions and they seem to be fine so far. A pain specialist came in today to determine better doses for her. She is on a lot of pain medicine and she is just exhausted. Today they inserted a PIC or Port so that she can be fed by IV (since she has not been able to eat).
She is at Memorial Hospital BUT at this time we'd like to ask that only FAMILY visits. She is not in any condition to see people and she needs to maintain a strong immune system so that she can get her next chemo treatment.
CJ and I will be in Santa Rosa till Tuesday (2/17) but Aunt Kathy (Mom's Sister) is getting here tonight and will be here until 2/27. We'll continue to assess her status and determine the best schedule for family and friends to help out.
Thank you all for your thoughts, prayers and helping hands!
- Mom was sick, actually laid around all day not feeling well
November 6,7, and 8, 2008
- Mom worked at the Church Bazaar all weekend
November 10, 2008
- She had her Annual Exam and the finding that there might be a cyst
November 14, 2008
- Her labs came back (from her physical) and indicated a slightly elevated CA125
- Docs Office called and told her she was scheduled for an ultrasound and meeting with OBGYN
- Follow up with OB
- Yes there is a cyst and OB would like UCSF Surgeon to remove it
- Surgery to remove cyst
- Mom was for warned that IF there was cancer they would get it out and do a full hysterectomy
- Cyst was determined to be cancer (rare form with floaters)
- Full hysterectomy done (removed ovaries, tubes, uterus, cervix, and lymphnodes)
- Told that she will need to recover from hysterectomy and then begin a chemotherapy treatment plan
- Pain increasing
- Another Ultrasound and CT Scan (Mom reported the Ultrasound was the most painful ultrasound she'd ever had)
- Follow up with Doc
- Ultrasound was pretty inconclusive
- CT Scan indicated MORE Cancer
- CJ and I arrived just in time for me to attend Chemo Teach with Mom (they taught us about the drugs they were going to use and how it was going to be administered)
- Pain increasing, several calls to on call doc who kept saying that the tumors were pressing on nerve endings (causing the pain) and that what she really needed was the chemo on 2/9. Suggested increasing pain meds
- Mom was in so much pain that dad took her up to the Chemo Infusion center early
- They said they wouldn't be able to administer chemo and that dad should take her to the ER
- In the ER for 4 hours before anyone realized her bladder was obstructed.
- Inserted Catheter and drained 2000 ccs (normal bladder holds 200, about to burst holds 500)
- As soon as they drained her bladder, they sent her home!!!
- First Chemo administered
- She did really well
- Pain went through the roof
- Took mom back to ER (because of discharge orders - certain symptoms required we go back)
- New CT Scan and mom admitted to hospital
Please feel free to forward this to others who may know and love my mom!